Monday, August 27, 2007

Fatigue - As Described by Author Dean Koontz

In a book I was reading by Dean Koontz recently, he was referring to the utter exaustion of one of his characters and put it:
"...she could not find the energy to get out of the armchair. She felt as if she
had stepped into a vast pool of quicksand and had expended every bit of her
strength in a frantic and futile attempt to escape". -Dean Koontz, Whispers

This description really stuck with me and I knew the sentiment would not be lost on my Chronique Friends. So this one is short but sweet - and just to share fatigue ala Dean!

Be Well!

Be sure to check out our message board, Cafe Chronique! It's the girliest spot on the web for Chronic Divas to chat!

Tuesday, August 14, 2007

Who Hates to Hear They Look Great?

This is a great article, thanks to Rest Ministries for passing it on.

Be Well,

Chronique Couture

Who Hates to Hear They Look Great? Over Half of the Chronically Ill!

SAN DIEGO – JULY 2007 — In a recent survey of 611 chronically ill
individuals, done by the National Invisible Chronic Illness Awareness Week committee, 53.27% of the respondents said that the most frustrating or annoying comment people make about their illness is “But you look so good!”
“Although telling someone they look good is often seen as a compliment,” says Lisa Copen, founder of National Invisible Chronic Illness Awareness Week “it feels like an invalidation of the physical pain or seriousness of one’s illness and the suffering they cope with daily.”

According to Copen, author of “Beyond Casseroles: 505 Ways to
Encourage a Chronically Ill Friend,”
statistics show that nearly 1 in 2
people in the USA have a chronic condition and 96% of it is invisible.

National Invisible Chronic Illness Awareness Week held September 10-16 for
2007, is an outreach to increase awareness that living with an invisible illness
can be emotional challenge—as well as physical—and that more people than we
would imagine are suffering silently.

Respondents answered the survey at and
reported the following other annoying comments people tend to make:

* “Your illness is caused by stress.” (14.22%)

* “If you stopped thinking about it and went back to work…” (12.42%)

* “You can’t be in that much pain. Maybe you just want attention.” (10.95%)

* “Just pray harder.” (9.15%)

Carmen Leal, creator of SomeOne Cares Christian Caregiver Conference and author of The Twenty-Third Psalm for Caregivers says, “When someone appears physically
normal people are less likely to show understanding and compassion. National
Invisible Chronic Illness Awareness Week is an important opportunity to help
families, businesses, churches, and communities understand that conditions
without an outward sign are just as debilitating as other more visible illnesses
and disabilities.”

Copen, 38, who has live with rheumatoid arthritis and fibromyalgia for fifteen years agrees. “We know that 75% of marriages impacted by illness end in divorce and 70% of suicides have uncontrollable physical pain as a factor.* There are hundreds of invisible illness such as diabetes, cancer, myasthenia gravis, fibromyalgia, chronic fatigue syndrome, and Crohn’s disease as well as mental illness and conditions such as bulimia or migraines. Regardless of one’s illness or level of pain, feeling isolated and misunderstood can be emotionally devastating. We are each responsible for learning how to effectively show compassion and understanding to those we can about, including the chronically ill.”

National Invisible Chronic Illness Awareness Week’s web site has articles, resources and will feature twenty online seminars during Sept 10-14, 2007. Guests include Maureen Pratt, author of “Peace in the Storm: Meditations on Chronic Pain and Illness” and Jenni Prokopy, founder of Outreach
materials include t-shirts, silicone awareness bracelets and rack cards,
appropriate for support groups or the work place state what to say and not say
to a chronically ill person.

The theme for 2007’s invisible illness week
campaign is “Living with invisible illness is a roller coaster. Help a friend
hold on!”
For more information see
call 888-651-7378. National Invisible Chronic Illness Awareness Week is
sponsored by Rest Ministries,, a
Christian organization that serves the chronically ill and HopeKeepers Magazine.
* Sources: National Health Interview Survey /
Mackenzie TB, Popkin MK: "Suicide in the medical patient.". Intl J Psych in Med
17:3-22, 1987
# # #
Nearly 1 in 2 people in the USA has a
chronic condition and 96% of it is invisible. A new survey reveals that over
half of the chronically ill get annoyed when someone says, "You look so good!”
because it invalidates their illness and suffering. National Invisible Chronic
Illness Awareness Week strives to create awareness for invisible illness.

Thursday, August 9, 2007

Happy Birthday ChronicBabe!

Happy 2nd birthday to ChronicBabe "...For Babes who just happen to have chronic illness"!

Thanks for the uplifting and always useful info you provide on your site and the Chronique or Chronically Unique look forward to growing old with you! :)

...... and many mooooooooooore.......

Saturday, August 4, 2007

Ehlers-Danlos in August's Chronique Spotlight

Ehlers-Danlos National FoundationWhat is Ehlers-Danlos?

Individuals with the Ehlers-Danlos Syndrome (EDS) have a defect in their connective tissue, the tissue that provides support to many body parts such as the skin, muscles, ligaments, and organs. The six major types of EDS are classified according to their manifestations of signs and symptoms, such as stretching skin, unstable joints, and tissue fragility (in organs and blood vessels). Unfortunately there is no current cure for EDS so many folks live in constant pain, are disabled, or die prematurely from ruptured aneurysms.

To learn more about EDS, you can checkout the foundation's website at , contact EDNF by phone at 213-368-3800, or attend the 2008 EDS Learning Conference, July 31–August 2, 2008 in Houston, Texas.

Visit our Chronique Spotlight page. 10% of each sale that we make in the month of August will be donated to EDNF.*

Be Well!

*All over our county and around the world, there are men & women that work tirelessly to offer new drugs, cures for diseases for which there are none & hope for people everywhere whose lives are touched by illness. Chronique Couture wants to do our part too! 10% of each sale that we make will be given back to our monthly Chronique Spotlight organization. As our monthly sales grow, with the support of our customers, so will our monthly gift. As fun as it is to pimp out our Chroniqueness, the preference would always be to not need some of the items we must use to medicate or stay comfortable. Chronique Couture will focus on keeping it cute, while offering our small part to those working for cures.